PSC Patients Europe

Info

Our Mssion is to Provide Support to the European Primary Sclerosing Cholangitis (PSC) Community.

Geschiedenis

Vision

1. To closely work together and form a strong liaison in finding a PSC cure and improve the quality of life for PSC patients.

2. To provide as many Europeans as possible with research and medical PSC-related information in lay man’s word in the native language.

3. Multi-stakeholder approach. PSC Patients Europe is an innovative, bonding and inspiring partner for all PSC stakeholders, including policy makers, health care professionals, patients, health insurers, patient organisations, academia, pharmaceuticals and funders.


PSC Patients Europe is a patient driven disease-specific organisation, often complementary to the already existing national PO’s, which are frequently organ-based PO’s.

The patient perspective is key in all our activities. We cherish our multi-stakeholder approach.

And, in all our activities, we try to take the paediatric element in consideration.